Hello everyone out there. I have read many blogs through all the time I have spent searching online for different answers to various questions that I have Googled. I have finally decided to create a blog dedicated to my life as I strive to regain my life after dealing with a very rare and difficult illness to deal with, and one that I have dealt with most of my life.
I believe that it would best for me to start off giving you a brief history of my life and what I have gone through. I won't give an extremely boring summary, but just so you can get to know who I am and what I have dealt with so far. From an early age I dealt with being overweight, and also had walking difficulties. Around the age of 6, I began walking with a limp, and my parents took me to different doctors. I was told that I had a mild form of cerebral palsy and I was giving different exercises to do with physical therapy. I hated doing these exercises because they made me feel like I wasn't a normal child. I suffered a lot of struggles with my weight. I was told that I was overweight because it was in my genes, which later I found technically was true, but I will get to that. I always fought so hard to do whatever I wanted to do. Sometimes I had to be at the bottom of the totem pole to be involved with things, but I did what I could to be involved with as much as I could. After high school I moved to the area where my father was from and went to college there. After college I had all the dreams of finding a good job in marketing management, however shortly after I started to not feel well.
The first symptom I felt was edema in my legs. My mom was the first person to notice it, when it first began I didn't know what was causing it. It became worse and worse, and at one point fluid actually was seeping from my skin. I experienced more weight because of the fluid and it became more and more difficult for me to walk. I went to a few doctors and was given diuretics, and one doctor prescribed a lymphedema pump. None of these worked for me. In 2005 I developed an infection in my leg and a possible blood clot in my lungs. I was admitted to the hospital for over a month. While I was in the hospital I finally had the beginnings of the answer to my problems, or the main answer. They told me that I could have Cushings Syndrome, which in most cases is a tumor on the pituitary gland. I was given numerous tests, by collecting 24 hours of my urine. All these tests results were coming back extremely high. Before I was sent home I had an MRI, which came back clean, however the doctor still thought I had cushings, and sent me to a neurosurgeon in Pittsburgh.
The doctors finally diagnosed me with Cushings and I had the surgery in January of 2006. This same illness is what I had since was a child, and what I knew also killed my father. The surgery that I had was successful, and I am in remission from Cushings, however the recovery has been tough. I had most of the symptoms related to the illness, and most of them went away, except for the most difficult for me to deal with: obesity, edema, and weak muscles. After my surgery I met some fellow "cushies" that lived in the Pittsburgh area and also chatted with some on a Cushings support website. They told me about Growth Hormone Deficiency and how after surgery this can happen due to damage to the pituitary gland. I had to go through numerous doctors to listen to me, however I finally found one to listen to me, and I was GH deficient. I have been taking Growth Hormone injections for the past 3 years now, and it has been helping me some.
Taking the GH helped some but I really needed to start figuring how to get back to walking as I once did, and not relying so much on having a wheel chair with me all the time. I really wanted my life back, but in some ways I was afraid of failure. Part of me felt that if I didn't try I at least had some hope. I knew that I was just making excuses, but I changed my frame of mind, mainly due to the people that I had in my life and others who I removed from my life. For about a year now I have been doing physical therapy twice a week and I have been making some really big improvements. Also in the past year and a half I have lost 150 lb. With cushings I weighed over 400 lb and I am now down to 270. I still have a ways to go, but I feel that I have come so far.
So there is a summary about what I have gone through in the past few years. I have different activities that I have acquired through the years. So I guess that with this blog I would like to share my physical healing along with activities that I am involved in, that are also helping to heal me emotionally, socially, spiritually, and other ways that I can heal. My most enjoyed hobbies lately include reading, jewelry making, and listening to Japanese pop music as well as some Korean and American. I guess that I will end here. Until next time....